Authenticity, Relatability and Collaborative Approaches to Sharing Knowledge about Assistive Living Technology

Health and care providers are increasingly looking to online and peer-to-peer services to supplement existing channels of assistive living technology (ALTs) provision and assessment. We describe the findings from 12 co-design workshops with 28 people from the UK representing a range of older people with and without health conditions, users of ALT and carers for people using such devices. The workshops were conducted to explore issues related to finding reliable information about ALT with the goal of gathering requirements for the design of a peer-to-peer knowledge sharing platform. Our analysis highlights how a current reliance on peers and informal networks relates to a desire to establish the authenticity and relatability of another person's experience to one's own circumstances. This connects to a perceived mistrust in information where provenance and authenticity is not clear. We use these to critique the wisdom of taking an e-marketplace and recommendation service approach to ALT provision and assessment, and offer alternatives based on our findings.

[1]  P. Nelson Information and Consumer Behavior , 1970, Journal of Political Economy.

[2]  B Phillips,et al.  Predictors of assistive technology abandonment. , 1993, Assistive technology : the official journal of RESNA.

[3]  S. Sénécal,et al.  The influence of online product recommendations on consumers' online choices , 2004 .

[4]  Jonathan L. Herlocker,et al.  Evaluating collaborative filtering recommender systems , 2004, TOIS.

[5]  John Suler,et al.  The Online Disinhibition Effect , 2004, Cyberpsychology Behav. Soc. Netw..

[6]  Jennifer Preece,et al.  A multilevel analysis of sociability, usability, and community dynamics in an online health community , 2005, TCHI.

[7]  A. Broom Virtually He@lthy: The Impact of Internet Use on Disease Experience and the Doctor-Patient Relationship , 2005, Qualitative health research.

[8]  V. Braun,et al.  Using thematic analysis in psychology , 2006 .

[9]  M. Field,et al.  The Future of Disability in America , 2007 .

[10]  Rebecca E. Grinter,et al.  EatWell: sharing nutrition-related memories in a low-income community , 2008, CSCW.

[11]  Ling Liu,et al.  Do online reviews affect product sales? The role of reviewer characteristics and temporal effects , 2008, Inf. Technol. Manag..

[12]  David W. McDonald,et al.  Locating patient expertise in everyday life , 2009, GROUP.

[13]  Myriam Lewkowicz,et al.  Translating social support practices into online services for family caregivers , 2009, GROUP.

[14]  Panayiotis Zaphiris,et al.  Older adults' perceptions and experiences of online social support , 2009, Interact. Comput..

[15]  M. McCartney Will doctor rating sites improve the quality of care? No , 2009, BMJ : British Medical Journal.

[16]  Neil Bacon Will doctor rating sites improve standards of care? Yes , 2009, BMJ : British Medical Journal.

[17]  Rebecca E. Grinter,et al.  Characteristics of shared health reflections in a local community , 2010, CSCW '10.

[18]  Elizabeth Sillence,et al.  Seeking out very like-minded others: exploring trust and advice issues in an online health support group , 2010, Int. J. Web Based Communities.

[19]  David W. McDonald,et al.  Bringing the field into focus: user-centered design of a patient expertise locator , 2010, CHI.

[20]  Elmer V. Bernstam,et al.  Social support in an Internet weight loss community , 2010, Int. J. Medical Informatics.

[21]  L. Hinton,et al.  Infertility; isolation and the Internet: a qualitative interview study. , 2010, Patient education and counseling.

[22]  A. Coulter Do patients want a choice and does it work? , 2010, BMJ : British Medical Journal.

[23]  Peter C. Wright,et al.  Experience-Centered Design: Designers, Users, and Communities in Dialogue , 2010, Experience-Centered Design.

[24]  S. Shyam Sundar,et al.  Using interface cues in online health community boards to change impressions and encourage user contribution , 2011, CHI.

[25]  T. Shakespeare,et al.  Editorial , 2011, Disability and rehabilitation.

[26]  Klaas Sikkel,et al.  Virtual communities for elderly healthcare: user-based requirements elicitation , 2011, Int. J. Netw. Virtual Organisations.

[27]  Gregory D. Abowd,et al.  Designing a social network to support the independence of young adults with autism , 2012, CSCW.

[28]  Mark S. Ackerman,et al.  Collaborative help in chronic disease management: supporting individualized problems , 2012, CSCW.

[29]  Christopher A. Le Dantec,et al.  Participation and publics: supporting community engagement , 2012, CHI.

[30]  Markus Zanker The influence of knowledgeable explanations on users' perception of a recommender system , 2012, RecSys '12.

[31]  Barry A. T. Brown Beyond Recommendations: Local Review Web Sites and Their Impact , 2012, TCHI.

[32]  S. Ziebland,et al.  Health and Illness in a Connected World: How Might Sharing Experiences on the Internet Affect People's Health? , 2012, The Milbank quarterly.

[33]  Stephen Lindsay,et al.  Questionable concepts: critique as resource for designing with eighty somethings , 2012, CHI.

[34]  Luis Fernandez-Luque,et al.  HealthTrust: A Social Network Approach for Retrieving Online Health Videos , 2012, Journal of medical Internet research.

[35]  Geng Cui,et al.  Terms of Use , 2002 .

[36]  Steven J. Jackson,et al.  Repair worlds: maintenance, repair, and ICT for development in rural Namibia , 2012, CSCW.

[37]  Stephen Lindsay,et al.  Invisible design: exploring insights and ideas through ambiguous film scenarios , 2012, DIS '12.

[38]  Elizabeth Sillence,et al.  Why don't we trust health websites that help us help each other?: an analysis of online peer-to-peer healthcare , 2013, WebSci.

[39]  E. Sillence,et al.  Why don’t we trust health websites that help us help each other? , 2013 .

[40]  Stephen Skalicky Was this analysis helpful? A genre analysis of the Amazon.com discourse community and its “most helpful” product reviews , 2013 .

[41]  Michael Massimi,et al.  Life transitions and online health communities: reflecting on adoption, use, and disengagement , 2014, CSCW.

[42]  Wai-Tat Fu,et al.  Expert voices in echo chambers: effects of source expertise indicators on exposure to diverse opinions , 2014, CHI.